Thirteen people describe everyday restrictions
The research, carried out in 2021, involved 13 people through a focus group and interviews. Participants described intensive planning, lost spontaneity and compromises around education, work and family life. Those with sufficient personal assistance reported greater control. The small qualitative study describes experiences rather than national prevalence. [1]
Des Kenny links assistance to choice
“Independent living is ultimately about living our lives with choice and control,” ILMI chair Des Kenny wrote in the foreword. The report argues that better assistance can improve relationships by allowing relatives to spend time together beyond providing essential support. Writer and activist Sarah Fitzgerald welcomed the work and ILMI’s continuing campaign. [1]
The findings enter the campaign for a right
ILMI returned to the research in its July 2024 PAS NOW update. The organisation called for a national definition of personal assistance, consistent assessment, increased investment, better information and legislation guaranteeing access. These were campaign demands for a service directed by disabled people themselves. [3]